About This Site
A few years ago the Centers for Disease Control and Prevention (CDC) conducted a survey and determined that adults with Spina Bifida were not leading as full, fulfilling, and independent lives as they or their caregivers hoped. The CDC convened a group of professionals from across the country to begin to examine this problem and develop ways in which children with Spina Bifida could better transition to “successful” adulthood. The group developed a “life course model” to map out the developmental stages and topics that were determined to have the most impact on a successful adult life. This site is the culmination of the work of that group.
The site examines developmental milestones that are integral to a successful transition to adulthood for children with Spina Bifida. It provides potential tips and interventions, assessment tools, and general resources for each milestone.